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Resources
Organizations​
The ALS Association is the only national not-for-profit health organization dedicated solely to the fight against ALS. The organization’s mission is to lead the fight to cure and treat ALS through global cutting-edge research, and to empower people with Lou Gehrig’s Disease and their families to live fuller lives by providing them with compassionate care and support. On their website find comprehensive information on topics including patient services, community services, public policy, research and ALS news, as well as order publications, videos and resource directories, most of which are free-of-charge.
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ALS Association, Greater Philadelphia Chapter
Joan Dancy & pALS has partnered with the Greater Philadelphia Chapter as their regional Monmouth and Ocean County Resource Group to access the most extensive patient services program in the country.
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Hackensack Meridian Health Jersey Shore University Medical Center
Neptune, NJ (Medical Director: Dr. Mary Sedarous) or to make an appointment, please call 732-776-3307 or email Ellenanne.morse@hmhn.org. Nurse Navigator Ellen Morse, RN will assist you.
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ALS Division of the Muscular Dystrophy Association
The ALS Division of MDA offers a comprehensive range of services and continues to search for a treatment or cure for ALS.
Research
ALS Therapy Development Institute
The world’s largest researcher dedicated to slowing, arresting and curing ALS.
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The Robert Packard Center for ALS Research at John Hopkins offers information on Clinical Trials.​
Videos
A video honoring ALS patients from the ALS Association Greater New York Chapter.​